NORD Rare Disease Videos | Informational Videos About Rare Diseases
The NORD Rare Disease Video Library houses educational videos on rare diseases for patients, caregivers, students, professionals and the public. NORD works with medical experts and patient …
Sotos Syndrome - Symptoms, Causes, Treatment | NORD
May 19, 2025 · Learn about Sotos Syndrome, including symptoms, causes, and treatments. If you or a loved one is affected by this condition, visit NORD to find resources and
Patient Assistance Programs - National Organization for Rare Disorders
Since 1987, NORD has provided assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford. These programs provide medication, financial …
Rare Disease Research Grant Program | NORD
Request for Proposals NORD’s Rare Disease Research Grants Program provides seed-money grants to qualified investigators for scientific and/or clinical research. The hope is that these studies ultimately …
Patient Organizations - National Organization for Rare Disorders
Representatives of patient organizations who are interested in listing an organization in the NORD’s Organizational Database (ODB) may contact NORD.
Rare Disease Advisory Councils - National Organization for Rare …
NORD supports the establishment of well-organized, high-functioning Rare Disease Advisory Councils in every state. A Rare Disease Advisory Council (RDAC) acts as an advisory body that gives the rare …
What You Should Know About Undiagnosed Rare Diseases | NORD
NORD strongly recommends discussing options to participate in research with your doctor. Research can help identify new diseases, expand our understanding of known diseases, and potentially …
Pontocerebellar Hypoplasia - Symptoms, Causes, Treatment | NORD
Jul 18, 2025 · Learn about Pontocerebellar Hypoplasia, including symptoms, causes, and treatments. If you or a loved one is affected by this condition, visit NORD to find
Resources - National Organization for Rare Disorders
May 12, 2025 · Resources Archive - National Organization for Rare DisordersThe National Organization for Rare Disorders (NORD®) hosted this webinar for advocates interested in establishing Rare …
Contact Us - National Organization for Rare Disorders
Contact Us NORD is leading the fight to improve the lives of patients with rare diseases. For more information or to learn more, use the contact details below or sign up for email communications here. …