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Eddie Vedder’s quest to help cure a rare disease subject of new documentary
Matter of Time,” a documentary featuring legendary rocker Eddie Vedder premiering this fall at the Tribeca Film Festival, is ...
Palvella Therapeutics Granted Additional U.S. Patent for QTORIN™ Rapamycin for the Treatment of Microcystic Lymphatic Malformations
Fifth issued patent in the U.S. for QTORIN™ rapamycin with anticipated patent life extending into 2038 QTORIN™ rapamycin has ...
TikToker Hannah Campbell’s 10-month old daughter dies from rare skin disease after revealing she was ‘fading’
A TIKTOKER has revealed that her 10-month-old daughter has died after suffering from a rare skin disease. In a heartbreaking ...
KTEN7d
Eddie Vedder’s quest to help cure a rare disease subject of new documentary
a rare genetic skin disease that causes blisters and skin erosion and predominantly affects children.
CNN6d
Eddie Vedder’s quest to help cure a rare disease subject of new documentary
a rare genetic skin disease that causes blisters and skin erosion and predominantly affects children. Proceeds from those concerts were directed to EB Research Partnership (EBRP), a foundation co ...