When I moved away for college, I was determined to prove that I could manage my CF all by myself. But I was thrown for a loop when I was unexpectedly diagnosed with CF-related diabetes. I thought I ...

This year, theratyping, the process of matching medications with mutations, enabled more people with cystic fibrosis who have rare mutations to benefit from modulators. In the first plenary at the ...

During a telehealth call, a renowned surgeon in Minneapolis told my parents and me, “We recommend surgery. It will be extensive — a TPIAT (total pancreatectomy and islet cell transplantation). This ...

When I was diagnosed at the age of 7, I really didn’t worry about my mortality — I was 7! Since infancy, my mom and grandmother (who was a nurse) thought there was something wrong with me, but they ...

The Cystic Fibrosis Foundation has announced the recipients of its fourth annual Impact Grants program, which provides grants of up to $10,000 per year to individuals or organizations for programs ...

When I was 12 years old, I had to be admitted to the hospital, via the ER, with what turned out to be DIOS -- a bowel blockage. Since I had been born with meconium-ileus, I had a vague understanding ...